Summary Data Tables

//Summary Data Tables
Summary Data Tables 2017-09-20T11:43:54+00:00

Alberta’s Tomorrow Project – Data Summary

Here are summaries of the data and biospecimens currently available from Alberta’s Tomorrow Project (ATP). New data are regularly coming online, so check back for updates!

We encourage you to browse through these tables to see if our data and biological samples fit your research question.  You can learn more in our Data Collection Overview and Survey Information pages. Please contact our Access team by email or phone at any time.

Alberta's Tomorrow Project Timeline

 

Our Timeline:  The figure above shows the evolution of Alberta’s Tomorrow Project (ATP); further information can be found on Our History and Data Collection Overview pages.

ATP was launched in 2000 and recruitment continued until 2015.  Questionnaires were administered throughout this period, so the type and number of surveys completed by a participant depends on when they joined.

For example, a participant recruited in 2001 was invited to fill out the Health and Lifestyle Questionnaire (HLQ), followed by the Canadian Diet History Questionnaire-I (CDHQ-I) and the Past-Year Total Physical Activity Questionnaire (PYTPAQ) as part of the baseline enrollment package.  Such a participant would have been sent additional questionnaires in subsequent years, such as Survey 2004 and Survey 2008.

In 2008 ATP joined four other cohorts across Canada to form the Canadian Partnership for Tomorrow Project (CPTP).  Two versions of questionnaires were delivered during this time: the Updated Health and Lifestyle Questionnaire (UHLQ) along with the Physical Activity and Nutrition Survey (PANS) or the CORE questionnaire. Participants completed either UHLQ/PANS or CORE, as both contained very similar information.

Further information about the content of ATP questionnaires can be found on the Survey Information page. For the full surveys, click here.

Survey Completions

As shown above, participants have completed one or more questionnaires, depending on when they joined ATP.  The table below provides an estimate of the numbers of participants who have completed a single survey or combination of surveys, those who have provided a blood sample, and those diagnosed with cancer.

Further information and variable types available from each questionnaire can be found in Survey Information.  ATP surveys can be found here.

For more specific numbers relevant to your particular research question, please contact us at ATP.Research@ahs.ca.

Survey Type Completed Survey(s) Completed Survey(s) and Provided Blood Sample Completed Survey(s) and Diagnosed With Cancer1 Completed Survey(s), Provided Blood Sample and Diagnosed With Cancer1
example:
Health and Lifestyle Questionnaire (HLQ)
All participants who completed the HLQ All participants who completed the HLQ and provided a blood sample2 All participants who completed the HLQ and then were diagnosed with any cancer All participants who completed the HLQ, provided a blood sample, and then were diagnosed with any cancer
HLQ 31211 9648 2663 442
HLQ,
CDHQ-I and
PYTPAQ3
26890 9308 2368 431
HLQ and
Survey 20044
9693 3164 1036 140
HLQ and
Survey 20084
20799 8424 1795 402
HLQ,
Survey 2004 and
Survey 2008
7430 2904 756 135
UHLQ/PANS or CORE 39421 28389 1280 436
HLQ and
UHLQ/PANS or CORE
15693 9478 1280 436
Survey 2008 and
UHLQ/PANS or CORE
13950 8357 1168 401
HLQ,
Survey 2008 and
UHLQ/PANS or CORE
13949 8356 1168 401
Survey Type Completed Survey(s) Completed Survey(s) and Provided Blood Sample Completed Survey(s) and Diagnosed With Cancer 3 Completed Survey(s), Provided Blood Sample and Diagnosed With Cancer 3

Notes

1 – Numbers reflect primary/incident cancers only, excluding non-melanoma skin cancer. Cancer incidence data is obtained via semi-annual linkage with the Alberta Cancer Registry.

2 – A reminder that the blood samples were collected between 2009 and 2015; therefore, for surveys completed prior to this time (e.g. HLQ, CDHQ-I, PYTPAQ, Survey 2004 and Survey 2008), the survey information will pre-date the blood sample collected.  Urine samples were also collected at the time of blood sample collection, and therefore the number of participants with available urine samples is largely comparable to those with available blood sample.  Information about other biospecimens and physical measurements available on ATP participants is available on the Data Collection Overview page.

3 – The values represented here reflect number of participants who completed all three questionnaires (HLQ, CDHQ-I, and PYTPAQ). If you are only interested in using HLQ and CDHQ-I together or HLQ and PYTPAQ together, the numbers will be very similar to the three questionnaires combined. This is because similar numbers of participants completed the CDHQ-I and/or PYTPAQ.

4 – The values represented here reflect number of participants who completed HLQ and Survey 2004 or HLQ and Survey 2008. If you are interested in using only Survey 2004 or Survey 2008 alone, the numbers will be very similar to the combined questionnaires. This is because Survey 2004 and Survey 2008 were only sent to participants who had already completed the HLQ.

Summary of Cancer Diagnosed in Alberta’s Tomorrow Project Participants

ATP participants have generously provided their personal information and biospecimens to support research in the hopes of better understanding cancer and other chronic diseases.

The table below depicts the numbers of ATP participants who have been diagnosed with cancer over the course of follow-up.  Participants consented to linkage with administrative databases, such as the Alberta Cancer Registry.  ATP conducts semi-annual linkages with the Alberta Cancer Registry, which has been awarded Gold Standard certification from the North American Association of Central Cancer Registries.

Cancer Type Total Male Female Participants recruited 2000-2008 Participants recruited 2009-2015 Participants who provided a blood sample and then were diagnosed with cancer
Bladder 57 47 10 51 6 14
Bones, Joints & Articular Cartilage 1 1 0 1 0 1
Brain 44 23 21 31 13 20
Breast 697 0 697 531 166 214
Cervix/Uterine 17 0 17 10 7 6
Colorectal1 340 162 178 279 61 89
Connective, Subcutaneous & Other Soft Tissues 25 14 11 16 9 9
Endometrium 172 0 172 136 36 47
Esophagus 25 21 4 22 3 5
Gall Bladder 12 3 9 10 2 3
Kidney 72 35 37 57 15 22
Leukemia 127 64 63 111 16 33
Liver & Intrahepatic Bile ducts 33 18 15 29 4 6
Lung/Bronchus 280 110 170 244 36 66
Multiple Myeloma & Plasmacytoma 47 19 28 38 9 17
Non-Hodgkin Lymphoma 142 74 68 111 31 45
Other Hematopoietic & Reticuloendothelial 48 17 31 41 7 16
Ovary 49 0 49 39 10 17
Pancreas 75 32 43 64 11 11
Prostate 585 585 0 461 124 193
Skin Melanoma 161 70 91 117 43 54
Small Intestine 19 10 9 18 1 3
Stomach 33 23 10 30 3 5
Testis 9 9 0 7 2 2
Thyroid 89 21 68 65 24 29
Unknown Primary 23 10 13 21 2 4
All other2 180 76 104 129 51 56
Total of All Cancers2 3,362 1,444 1,918 2,669 692 987
Cancer Type Total Male Female Participants recruited 2000-2008 Participants recruited 2009-2015 Participants who provided a blood sample and then were diagnosed with cancer

Notes
1 – Includes Colon and/or Rectum and/or Rectosigmoid Junction
2 – Excluding non-melanoma skin cancer